My friend, J-9, from age 9, till now. Click to do something about IBC


Special note from Pip, February 16, 2012. Please be advised that Html Gear will be retiring on April 1.
As of that date, all HTML Gear modules will cease functioning and I'll no longer be able to log into htmlgear.com to make changes or updates.
So, if I'm not too much of an April Fool, I intend to make a new guestbook for your comments and signatures some other way,
so we'll all still be able to tell the late J-9, and the world, that we've read it. Thank you very much for reading below, friends.

My beloved friend, J-9, big-hearted motorcycle-mama, from age 9, till  just five years or so before her death. Very sadly, she died on New Year's Eve, 2010.
I intend that his page will remain in perpetuity with your comments, and to remain in touch with her bereaved son, Dave, concerning it.
Our awareness will help save other women from the ravages of Inflammatory Breast Cancer (IBC). The breast cancer without a lump.
Some were helped within days of this page's commencement, leading to a diagnosis, and treatment, their lives saved.
Though we never met, as she lived in the USA. and I in Australia, I loved J-9 very much,
and for about 12 years, right until weeks before her untimely death, she told me she was in love with me.
Our experiences together, and what she told me via email via the Internet,
had me planning to go soon to the US in 2012 to be with her, at least for a couple of weeks or so.
I tell some of our experiences in my Memoirs. For adult reading only, thank you.

tell Jeannine Wilson you've read about IBC!

 

Hello, and thank you for visiting. I have nothing to sell and ask no money, just five minutes of your time to help save lives.

My name is Pip Wilson, I live in Australia, and I am asking you to do something for my friend, and for women all over the world.

This simple thing I ask will only take you about five minutes to do, will cost nothing and has no strings attached.

My friend in the USA is Jeannine Wilson, and she was very ill with a quite rare form of breast cancer called IBC (Inflammatory Breast Cancer). 

IBC is not the same as other breast cancers – it can be extremely hard to detect, even with good equipment, and there might be no lump on examination.

Jeannine Wilson, or J-9 to her friends, was not a relative of mine, and we have never met, except via the marvel of the Internet where we have become firm friends. My belief and hope is that up there in her Heaven she will again be riding her 750 cc motorcycle, laughing constantly and baking cookies for the neighbourhood kids who used to drop round after school for her warmth and wisdom.

Although she rarely complained, I have gained insight into the agonies and death that go with this disease. In only one year, 50 women in J-9's Internet support group died. But death is not inevitable. And you and I are not powerless.

Because I have seen just a little of how terrible IBC is, I requested and received J-9's permission to create this page. Being one of the most caring people I know, J-9 wants as few people as possible to suffer as she has, so that's why I'm doing this. And it helps me not feel entirely powerless.

Stop Press!

Click to see how this page might have saved lives in its first month!

All I'm asking you to do is read the few lines in green below, invite two or more of your friends to read it, and leave a message in this Message Book. That's all.

You too, guys!! Come on, support the sisters! And please, tell your buddies. Their lives might depend on it.

This is where you can tell J-9 you've read about IBC

Read what others have told J-9

Tell J-9 you've read about IBC (read below first please) then click here to sign with our new (May 22, 2012) Message Book provider, tripod.

That's all I ask you to do. I believe that the more people know about this awful disease, the sooner there will be a cure. That's what J-9 taught me; now I request that you pass on the knowledge to as many people you can.

Below is what I ask you to read in the green text below, then tell at least two people, then scroll back up and sign the book and "Tell J-9 You've Read It"! (And please urge email lists, clubs, organizations, webmasters, etc to Tell J-9! There's a button below for webmasters.)

Thank you for taking the time,

Abundance and gratitude,

Thank you for helping this project. Pip Wilson

Pip Wilson

PO Box 1246,
Coffs Harbour, NSW, Australia

 

 Please read this, tell two or more others, then tell J-9 you've read it!

What is Inflammatory Breast Cancer (IBC)? IBC is an advanced and accelerated form of breast cancer usually not detected by mammograms or ultrasounds.
While only 1 to 4 percent of newly diagnosed cases are IBC, 60 to 70 percent of all women with the disease do not live five years beyond their diagnosis.

The Look and Feel of IBC

Unlike other breast cancers, IBC does not present itself as a lump, but as inflammation. The symptoms a patient typically notices or feels include:

       Sudden swelling of a breast, which may look red, or feel itchy or warm;
       Ridges or raised or pitted marks (like the appearance of an orange peel) on breast skin;
       Nipple retraction or discharge; and/or
       Swollen lymph nodes in the underarm or above the collarbone.


J-9 says “RUN, don’t walk!”

Jeannine (J-9) Wilson, formerc publisher of Daily Planet News ezine, co-moderator of Almost Prophetic Quotes ezine  with Pip Wilson, and who recently being treated for IBC, wrote:

One of the most important things to keep in mind is if it's diagnosed as an infection and symptoms persist after 2 or 3 weeks of antibiotics, RUN, don't walk, for a second opinion. Go for as many as it takes. The number of doctors who persist in diagnosing as mastitis or clogged milk ducts is alarming. IBC is difficult to find, even with the most sophisticated scanning equipment. Most insurance companies just don't want to cover them because of lack of clinical proof, and those on State stand even less of a chance.
 I diagnosed myself a month before the doctors did. By the time they gave me a diagnosis I was already stage IV.

“I am on an IBC discussion list and it's very informative. These women are on the ball. I would suggest anyone with the smallest amount of concern should join. Just listen for a while, if it's more comfortable. The list is far from small talk. We compare symptoms, treatments … A to Z. We need awareness and funds for research to get treatment progressed from 'Drug of the month'.”

         
Now you've read it! Thank you. 
                Now I invite you to tell at least two people and then, I hope you'll ...
                                       Tell J-9 you've read it!

Here you can invite some friends to "tell J-9 they've read it":

 

Go J-9, go!!
Go J-9, go!!
Click image to see my animation stand alone. I made it by sticking J-9's head on an animation of a baby on a motorcycle.

 

Good! Thank you! You've read it!
Now please tell some friends, scroll up and click the link to
"Tell J-9 You've Read It"!

Thank you so much.

Pip

PS Sorry if there are pop-up ads. That's the price of the free message book I've used.

After you've told J-9 you might like to read these resources:

You Don't Have to Have a Lump to Have Breast Cancer   Inflammatory Breast Cancer

Discovery Health :: Inflammatory Breast Cancer
  
Inflammatory Breast Cancer Support

http://www.ibcmemorial.org/survivors.html      Google Inflammatory Breast Cancer    More

'The Median isn't the Message', by Stephen Jay Gould: why prognosis statistics shouldn't freak you out

Webmasters: Please link to this page! It might save lives.

Here's a button you can put on your server:



Tell J-9 You've Read It! 

J-9 Wilson and neighbourhood kids

Before she got ill, J-9 had lots of neighbourhood kids
come round for fresh baked cookies after school

Good news! This page helps to save lives!
Two people in our first month

The Tell J-9 page was created on October 20, 2003. 

While alive, J-9 wasn't able to get to the computer very often, but, on November 16, 2003 she wrote to me:

" ... a woman in Kentucky, a few hundred miles away .... Her ma, age 66 was symptomatic, she read the guestbook, wrote me. She took immediate action, was fortunate beyond belief to find a doc not too far away who was familiar with IBC, esp. from her remote location. She got a very quick diagnosis, and is already beginning chemo. Prime example of what your putting the page up for us is doing. I got a similar letter from a man in UK who got his wife to a specialist in record time....had been being treated for infection....now diagnosed as IBC...treatment started. Two lives right there with 100% better chance of remission because of halt in delays."

So please, scroll up and tell J-9 you've read it!! More is about J-9 and may be found in my Memoirs.

 

Inflammatory Breast Cancer in the news

 

Read more about today at Wilson's Blogmanac

Yellow News and current affairs from Yellow Times journalists worldwide, and other sourcesPages
News, current affairs

Book Loads of folklore and history behind your birthday and anniversaries and those of your friendsof Days
Birthdays, folklore, history

Sandy Beach Pip logs observations from homeAlmanac
Daily Aussie sand

Daily Planet 34 progressive newsfeeds on one pageNews
600+ headlines, 200+ sources


Subscribe free
Almost Prophetic Quotes
"Because our readers are bored 
with the usual quotations"

Subscribe free
Wilson's Almanac
Illustrated free daily ezine
"Think universally. Act terrestrially."

pagans4peace animation by Jeannine Wilson

Please only phone me 9-5, in business hours. I'm a 9-5 bloke. Thank you very much. Australia, (02) 6655 2785. All phone calls are very welcome in those hours.
With me, as with most Aussies, about 10pm is supper time, a good time for the last cuppa of the day.
I might add my news of the day at about that hour, about me and my loved ones, and so on, here at the foot of the page.