My friend, J-9, from age 9, till now. Click to do something about IBC

My friend J-9, big-hearted motorcycle-mama, from age 9, till now.
Our awareness will help save other women from the ravages of IBC.

 

 

tell Jeannine Wilson you've read about IBC!

 

Hello, and thank you for visiting. I have nothing to sell and ask no money, just five minutes of your time to help save lives.

My name is Pip Wilson, I live in Australia, and I am asking you to do something for my friend, and for women all over the world.

This simple thing I ask will only take you about five minutes to do, will cost nothing and has no strings attached.

My friend in the USA is Jeannine Wilson, and she is very ill with a quite rare form of breast cancer called IBC (Inflammatory Breast Cancer). 

IBC is not the same as other breast cancers – it can be extremely hard to detect, even with good equipment, and there might be no lump on examination.

Jeannine Wilson, or J-9 to her friends, is not a relative of mine, and we have never met, except via the marvel of the Internet where we have become firm friends. My hope is that she will again be riding her 750 cc motorcycle, laughing constantly and baking cookies for the neighbourhood kids who used to drop round after school for her warmth and wisdom.

Although she rarely complains, I have had gained insight into the agonies and death that go with this disease. In only one year, 50 women in J-9's Internet support group died. But death is not inevitable. And you and I are not powerless.

Because I have seen just a little of how terrible IBC is, I have requested and received J-9's permission to create this page. Being one of the most caring people I know, J-9 wants as few people as possible to suffer as she has, so that's why I'm doing this. And it helps me not feel entirely powerless.

Stop Press!

Click to see how this page might have saved lives in its first month!

All I am asking you to do is read the few lines in green below, invite two or more of your friends to read it, and leave a message in this Message Book. That's all.

You too, guys!! Come on, support the sisters! Tell your buddies.

 

This is where you can tell J-9 you've read about IBC

Read what others have told J-9

Tell J-9 you've read about IBC (read below first please)

 

That's all I ask you to do. I believe that the more people know about this awful disease, the sooner there will be a cure. That's what J-9 taught me; now I request that you pass on the knowledge to as many people you can.

Below is what I ask you to read in the green text below, then tell at least two people, then scroll back up and sign the book and "Tell J-9 You've Read It"! (And please urge email lists, clubs, organizations, webmasters, etc to Tell J-9! There's a button below for webmasters.)

Thank you for taking the time,

Abundance and gratitude,

Thank you for helping this project. Pip Wilson

Pip Wilson

PO Box 1246,
Coffs Harbour, NSW, Australia

 

  Please read this, tell two or more others then tell J-9:

What is Inflammatory Breast Cancer (IBC)?
IBC is an advanced and accelerated form of
breast cancer usually not detected by mammograms or ultrasounds.

While only 1 to 4 percent of newly diagnosed cases are IBC, 60 to 70 percent of all women with the disease do not live five years beyond their diagnosis.

The Look and Feel of IBC

Unlike other breast cancers, IBC does not present itself as a lump, but as inflammation. The symptoms a patient typically notices or feels include:

       Sudden swelling of a breast, which may look red, or feel itchy or warm;
       Ridges or raised or pitted marks (like the appearance of an orange peel) on breast skin;
       Nipple retraction or discharge; and/or
       Swollen lymph nodes in the underarm or above the collarbone.


J-9 says “RUN, don’t walk!”

Jeannine (J-9) Wilson, publisher of Daily Planet News ezine, co-moderator with Pip Wilson of Almost Prophetic Quotes ezine, and who is now being treated for IBC, writes:

One of the most important things to keep in mind is if it's diagnosed as an infection and symptoms persist after 2 or 3 weeks of antibiotics, RUN, don't walk, for a second opinion. Go for as many as it takes. The number of doctors who persist in diagnosing as mastitis or clogged milk ducts is alarming. IBC is difficult to find, even with the most sophisticated scanning equipment. Most insurance companies just don't want to cover them because of lack of clinical proof, and those on State stand even less of a chance.
 I diagnosed myself a month before the doctors did. By the time they gave me a diagnosis I was already stage IV.

“I am on an IBC discussion list and it's very informative. These women are on the ball. I would suggest anyone with the smallest amount of concern should join. Just listen for a while, if it's more comfortable. The list is far from small talk. We compare symptoms, treatments … A to Z. We need awareness and funds for research to get treatment progressed from 'Drug of the month'.”

         
Now you've read it! Thank you. 
                Now I invite you to tell at least two people and then ...
                                       Tell J-9 you've read it!

   

Here you can invite some friends to "tell J-9 they've read it":

 

 

Go J-9, go!!
Go J-9, go!!
Click for a just-for-fun animation I made by sticking J-9's head on an animation of a baby on a motorcycle.

 

Good! Thank you! You've read it!
Now please tell some friends, scroll up and click the link to
"Tell J-9 You've Read It"! I will let her know when you do.

Thank you so much.

Pip

PS Sorry if there are pop-up ads. That's the price of the free message book I've used.

 

After you've told J-9 you might like to read these resources:

You Don't Have to Have a Lump to Have Breast Cancer   Inflammatory Breast Cancer

Discovery Health :: Inflammatory Breast Cancer
  
Inflammatory Breast Cancer Support

http://www.ibcmemorial.org/survivors.html      Google Inflammatory Breast Cancer    More

'The Median isn't the Message', by Stephen Jay Gould: why prognosis statistics shouldn't freak you out

 

Webmasters: Please link to this page! It might save lives.

Here's a button you can put on your server:



Tell J-9 You've Read It!

http://www.wilsonsalmanac.com/tellj9.html

 

J-9 Wilson and neighbourhood kids

Before she got ill, J-9 had lots of neighbourhood kids
come round for fresh baked cookies after school

 

 

 

Good news! This page helps to save lives!
Two people in our first month

The Tell J-9 page was created on October 20, 2003. 

J-9 isn't able to get to the computer very often, but, on November 16, 2003 she wrote to me:

" ... a woman in Kentucky, a few hundred miles away .... Her ma, age 66 was symptomatic, she read the guestbook, wrote me. She took immediate action, was fortunate beyond belief to find a doc not too far away who was familiar with IBC, esp. from her remote location. She got a very quick diagnosis, and is already beginning chemo. Prime example of what your putting the page up for us is doing. I got a similar letter from a man in UK who got his wife to a specialist in record time....had been being treated for infection....now diagnosed as IBC...treatment started. Two lives right there with 100% better chance of remission because of halt in delays."

 

So please, scroll up and tell J-9 you've read it!!

 

 

 

This site is a member of WebRing.
To browse visit Here.

 

Inflammatory Breast Cancer in the news

 

 

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